Sex and Gender Identification and Implications for Disability Evaluation (2024)
Chapter: Appendix A: Public Meeting Agendas
Appendix A
Public Meeting Agendas
COMMITTEE ON SEX AND GENDER IDENTIFICATION AND IMPLICATIONS FOR DISABILITY EVALUATION
MEETING 1
MAY 30, 2023
VIRTUAL
| 3:30 p.m. | Welcome and Introductions Hortensia Amaro (she/her), Committee Chair Steve Rollins, Acting Associate Commissioner, U.S. Social Security Administration (SSA) |
| 3:40 p.m. |
Social Security Administration Overview Vincent Nibali, Technical Expert, Office of Medical Policy, Office of Disability Policy, SSA
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| 4:05 p.m. | Questions and Discussion Committee Members and SSA Staff |
| 4:35 p.m. | Adjourn Public Session |
MEETING 2
JULY 19, 2023
NATIONAL ACADEMY OF SCIENCES BOARD ROOM
The National Academy of Sciences
2101 Constitution Ave NW
Washington, DC 20418
| 1:30 p.m. | Welcome Hortensia Amaro (she/her), Committee Chair |
| 1:35 p.m. | Presentation and Discussion: Chronic Kidney Disease: Sex Differences, Impact of Gender-Affirming Care, and Appropriate Evaluation Criteria |
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Sofia Ahmed, M.D., MMSc, FRCPC (she/her), Professor, Cumming School of Medicine, University of Calgary; Nephrologist, Alberta Health Services—Calgary Zone |
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David Collister, M.D., Ph.D., FRCPC (he/him), Assistant Professor, Faculty of Medicine & Dentistry—Medicine Dept, University of Alberta |
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| 2:25 p.m. | Presentation and Discussion: Breaking the Gender–Cancer Association: Lessons from Quality Measurement for Preventive Screenings |
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Rachel Harrington, Ph.D. (she/her), Senior Research Scientist, Health Equity, National Committee for Quality Assurance |
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| 3:15 p.m. | Statement of Task Q&A |
| 3:20 p.m. | Closing Remarks Hortensia Amaro (she/her), Committee Chair |
| 3:20 p.m. | Adjourn Public Session |
MEETING 3
SEPTEMBER 14, 2023
KECK 209
The Keck Center,
500 Fifth Street, NW
Washington, DC 20001
| 1:30 p.m. | Welcome and Opening Remarks Hortensia Amaro (she/her), Committee Chair |
| 1:35 p.m. | Presentation and Discussion: Gender Identity Data Collection and Care Decision Making within the Veterans Health Administration |
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Lexi Matza, Ph.D. (they/them/theirs), Associate Director for Data & Analytics, LGBTQ+ Health Program, Patient Care Services, Veterans Health Administration |
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| 2:35 p.m. | Presentation and Discussion: Selecting Appropriate Pulmonary Function Test Reference Sex for Transgender and Gender Diverse Patients |
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Ethan Fechter-Leggett, D.V.M., M.P.V.M. (he/him), Research Epidemiologist, Field Studies Branch, Respiratory Health Division, National Institute for Occupational Safety and Health, Centers for Disease Control and Prevention |
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Dinah Foer, M.D. (she/her), Assistant Professor, Harvard Medical School, Associate Physician, Division of Allergy and Clinical Immunology, Brigham and Women’s Hospital |
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| 3:30 p.m. | Presentation and Discussion: Sexual Orientation and Gender Identity Data Collection in Electronic Medical Records |
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Carl Streed Jr., M.D., M.P.H., FACP (he/him/his), Assistant Professor of Medicine, Section of General Internal Medicine, Boston University Aram V. Chobanian & Edward Avedisian School of Medicine; Research Lead, GenderCare Center, Boston Medical Center |
| 4:25 p.m. | Closing Remarks Hortensia Amaro (she/her), Committee Chair |
| 4:30 p.m. | Adjourn Public Session |
MEETING 4
NOVEMBER 30, 2023, AND DECEMBER 1, 2023
KECK 201
The National Academy of Sciences
2101 Constitution Ave NW
Washington, DC 20418
DAY 1: November 30, 2023
| 9:15 a.m. | Welcome and Opening Remarks Hortensia Amaro (she/her), Committee Chair |
| 9:20 a.m. | Expert Panel: Variations in Sex Traits and Implications for Disability |
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Moderators:
Amy Tishelman, Ph.D. (she/her), Research Associate Professor, Psychology Department, Boston College |
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Selma Feldman Witchel, M.D. (she/her), Professor Emerita, University of Pittsburgh School of Medicine; University of Pittsburgh Medical Center, Children’s Hospital of Pittsburgh |
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Panelists:
Katharine Dalke, Ph.D. (she/her, they/them), Associate Professor of Clinical Psychiatry at University of Pennsylvania Perelman School of Medicine |
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Veronica Gomez-Lobo, M.D. (she/her), Division Chief of Gynecology, Children’s National Medical Center; and Director, Positive Reevaluation of Urogenital Differences (PROUD) Clinic |
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Louise Fleming, Ph.D., M.S.N.-E.D., RN (she/her), Professor and Associate Dean, Undergraduate Programs, The University of North Carolina at Chapel Hill School of Nursing; Immediate Past Chair of the CARES Foundation |
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Noi Liang, M.B.A., BCPA (she/her), Patient Advocate, Children’s Hospital Colorado; Member, SOAR Clinic (an interdisciplinary differences of sexual development/intersex care team) |
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Justin Tsang (he/him), Disability Rights Advocate; Advocate for Intersex People; Board Member, American Association for People with Disabilities |
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| 10:45 a.m. | Patient Panel: Chronic Disease and Disability for Transgender and Gender Diverse People |
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Moderators:
Raksha Jain, M.D. (she/her/hers), Professor, Department of Medicine, Division of Pulmonary and Critical Care Medicine, University of Texas Southwestern Medical Center; Medical Director, Adult Cystic Fibrosis Program |
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Dinushika Mohottige, M.D., M.P.H. (she/her/hers), Assistant Professor, Institute of Health Equity Research at the Icahn School of Medicine at Mount Sinai; Mount Sinai Barbara T. Murphy Division of Nephrology |
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Panelists:
Jess Walters (they/them): Disability Justice Advocate; Health Equity & Justice Fellow at the Center for Health Humanities and Ethics, University of Virginia |
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| Anonymous Panelist 2 | |
| 11:30 a.m. | Closing Remarks Hortensia Amaro (she/her), Committee Chair |
| 11:35 a.m. | Adjourn Public Session |
Day 2: December 1, 2023
| 9:15 a.m. | Introduction to Public Meeting Hortensia Amaro (she/her), Committee Chair |
| 9:20 a.m. | Patient and Provider Panel—Transgender and Gender Diverse People with Cancer: Cancer Treatment, Care, and Implications for Disability |
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Moderator:
Ash Alpert, M.D., M.F.A. (they/them/theirs), Instructor of Medicine (Hematology), Yale University School of Medicine |
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Panelists:
Yee Won Chong (he/they/dia), Filmmaker: Trans Dudes with Lady Cancer |
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Roman Ruddick (they/them), Cofounder, Transgender Cancer Patient Project |
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Charlie Manzano (he/him), Cofounder, Transgender Cancer Patient Project |
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| 10:20 a.m. | Closing Remarks Hortensia Amaro (she/her), Committee Chair |
| 10:25 a.m. | Adjourn Public Session |
