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Human Genome Editing: Scientific, Medical and Ethical Considerations

Completed

A multidisciplinary committee of experts studied the scientific underpinnings of human gene-editing technologies, their potential use in biomedical research and medicine -- including human germline editing -- and the clinical, ethical, legal, and social implications of their use. The committee set forth criteria that must be met before permitting clinical trials of heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents seven general principles for the governance of human genome editing.

Meeting

Human Gene Editing: Scientific, Medical and Ethical Considerations Meeting 5

  • September 24 - 25, 2016
  • Closed
  • Meeting
  • Past

This event is closed to the public.

Human Gene Editing: Scientific, Medical and Ethical Considerations Meeting #4

  • July 12 - 13, 2016
  • Closed
  • Meeting
  • Past

In its final public meeting, the committee heard from speakers about social issues associated with human gene editing, including race and genetics in US history and the intersection of moral views and...

Human Gene Editing Meeting #3 & Workshop

  • April 28 - 30, 2016
  • Closed
  • Meeting
  • Past

The committee received input from the international community regarding the underlying principles of governance for human gene editing. Watch video recording

Human Gene Editing: Scientific, Medical and Ethical Considerations Meeting #2

  • February 11 - 12, 2016
  • Closed
  • Meeting
  • Past

The committee heard input from select stakeholder groups, including public engagement experts, affected communities, industry, and regulatory bodies. View video recordings

Human Gene Editing: Scientific, Medical and Ethical Considerations Meeting #1

  • December 2 - 4, 2015
  • Closed
  • Meeting
  • Past

The committee held a brief open session in which they discussed the charge with the study sponsors.

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