Strategic Plan and Blueprint for Addressing Thalassemia in the United States

Meeting

Strategic Plan and Blueprint for Addressing Thalassemia in the United States (Committee Meeting 2)

April 22 - 23, 2025

Past

About

This meeting has been cancelled and will not occur.

Additional Information

Is it a Closed Session event?

Partially Closed

Contact

Zarah Batulan

(202) 334-1813
thalassemia@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting Closed

Strategic Plan and Blueprint for Addressing Thalassemia in the United States (Committee Meeting 1 Part 2)

April 10, 2025

2:00 PM - 6:00 PM (EDT)

Past

About

The committee on a Strategic Plan and Blueprint for Addressing Thalassemia in the United States will hold its first meeting virtually on April 7 and 10, 2025. The meeting will include an open, public session featuring presentations from invited speakers as well as closed deliberative sessions. The committee will hold additional information-gathering meetings in the coming months. The session on April 10th will be entirely closed.

Additional Information

Is it a Closed Session event?

Institution Closed

The following committee members were present at the closed sessions of the event

Jewel Mullen
Mei Baker
Anirban Basu
Michael Bender
Alexander Boucher
Sean P. David
Lee A. Fleisher
Ellen Fung
Cynthia Gillespie
Aaron Goldenberg
Mathew Kiang
Radhika Sawh

The following topics were discussed in the closed sessions:

The committee discussed what they learned in the open session and discussed the project.

The following materials (written documents) were made available to the committee in the closed sessions:

Background Documents

Date of posting of Closed Session Summary:

April 17, 2025

Contact

Zarah Batulan

(202) 334-1813
thalassemia@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Strategic Plan and Blueprint for Addressing Thalassemia in the United States (Committee Meeting 1 Part 1)

April 7, 2025

2:00 PM - 6:00 PM (EDT)

Past

Materials

About

The committee on a Strategic Plan and Blueprint for Addressing Thalassemia in the United States will hold its first meeting virtually on April 7 and 10, 2025. The meeting will include an open, public session featuring presentations from invited speakers as well as closed deliberative sessions. The committee will hold additional information-gathering meetings in the coming months. The open session for this meeting will take place on April 7 from 3:45-6:00 pm ET.

Additional Information

Is it a Closed Session event?

Partially Closed

The following committee members were present at the closed sessions of the event

Jewel Mullen
Anirban Basu
Michael Bender
Alexander Boucher
Sean P. David
Lee A. Fleisher
Ellen Fung
Cynthia Gillespie
Aaron Goldenberg
Mathew Kiang
Radhika Sawh

The following topics were discussed in the closed sessions:

During the closed session, the committee had an internal bias and conflict of interest discussion and discussed the project.

The following materials (written documents) were made available to the committee in the closed sessions:

Briefing book

Date of posting of Closed Session Summary:

April 17, 2025

Contact

Zarah Batulan

(202) 334-1813
thalassemia@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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Strategic Plan and Blueprint for Addressing Thalassemia in the United States

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